May Is the Month of Cystic Fibrosis Awareness Month. Across the Country, thousand of volunteer comes together and raises the awareness about the Cystic Fibrosis. In this Month different events are held and people with Cystic Fibrosis Share their Story. This Day is also known as CF Awareness Day.
Emily Entourage is a Non-Profit Organization. This Organization raises money and awareness to help find a cure for rare Cystic Fibrosis Disease. Emily Kramer-Golinkoff is the founder of this Organization. Emily Kramer-Golinkoff, a 34-year-old woman suffers from the Cystic Fibrosis.
What is Cystic Fibrosis?
Cystic Fibrosis is a Genetic Disorder. Cystic Fibrosis Affects the Person’s Lungs and Digestive system. Cystic fibrosis is a disorder which causes damage to the lungs, the digestive system of the body, and other organs in the body.
Cystic fibrosis affects the cells and produces sweat and digestive juices. These fluids are normally slippery and thin. But in people with cystic fibrosis, These Fluids are sticky and thick. Instead of acting as a lubricant, the secretions plug up tubes and blocks the airways.
cystic fibrosis requires daily care. People with Cystic fibrosis are usually able to attend school and work. People with cystic fibrosis had a better quality of life than in previous decades. People with cystic fibrosis now may live into their mid- the too late 30s, on average, and some are living into their 40s and 50s.
Screening of newborns for cystic fibrosis is now performed in every state of the United States. Now The condition can be diagnosed within the first month of life before symptoms develop. For newborn screening was performed, it’s important to be aware of the signs and symptoms of this disease.
Cystic fibrosis signs and symptoms vary, depending on the severity of the disease. Even in the same person, symptoms may worsen or improve as time passes. Some people may not experience symptoms until adulthood.
People with cystic fibrosis have a higher level of salt in their sweat. Parents often can taste salt when they kiss their children. Most of the other signs and symptoms of CF affect the digestive system.
In cystic fibrosis, in a gene changes a protein that regulates the movement of salt in and out of cells. Which result in thick, sticky mucus in the respiratory, digestive and reproductive systems, as well as increased salt in sweat.
How to Celebrate this Month?
who is interested in advocating on behalf of people with cystic fibrosis, you have a powerful voice. You can support the CF community.
To learn more about this day visit this site https://www.emilysentourage.org/